There is medicine, but it is too expensive for the family to pay for.
Anikó Krucsó's three-year-old son suffers from a rare and extremely bad disease. In the United States, there is already a cure for the insidious disease, but the treatment is very expensive, so the parents of the charming boy started a collection campaign.
Anikó Krucsó and Adrián Kneifel lived the everyday life of happy parents until December 19, 2022, when it was discovered that their son, Ádin, suffers from a difficult to diagnose, insidious, serious illness, which may force him into a wheelchair at the age of six.
The boy's mother said that Ádin developed just like his contemporaries, the first bad sign was the loss of appetite, which started them on the road to diagnosis.
"He had no appetite, at first we attributed this to the summer heat, but after the situation did not improve in the winter, we took him for examination, and the blood test showed that the factor indicating the degree of muscle breakdown and the liver function values were high. This was followed by numerous tests, and then we were told that my son suffers from Duchenne muscular dystrophy," recalled Anikó, who is not the type to back down from obstacles, but suddenly broke down under the weight of the bad news.
"We became aware of the diagnosis while preparing for Christmas, then came a few terrible days, I was crushed under the weight of the devastating news, but deep in my heart I felt that there would be a solution to my son's problem,
and between the two holidays, I already started organizing for the sake of Ádin's recovery," said Anikó, who quickly found out that there is already a gene therapy in the United States that promises very good results for the terrible disease, but the cost of this treatment is very high, so a fundraising campaign were launched.
"92 million has already been collected, but the price of the infusion, including hospital treatment, costs HUF 1.3 billion", said the mother fighting for her son, who is confident that this huge amount will be collected this year, so she could receive it in 2025 Ádin the injection and the hospital treatment, which would prevent the little boy from deteriorating.
There are still few signs of the disease, some movement problems only point to the extremely progressive, destructive disease.
Ádin's gait is a little more clumsy than that of his contemporaries, he can only climb stairs with help, and he tends to stand up leaning on his knees.
He is an open, curious, cheerful, charming little boy who sweeps everyone off their feet. More and more people in our country regard Ádin's recovery as a matter of their heart.
His mother is sure that her son will not deteriorate, she feels that Ádin will get the right help and he can live a full life.
"We would like to ask for the cooperation of the country, we cannot and will not allow money to be an obstacle to the recovery of our three-year-old son," emphasized the mother.
Anyone who would like to support the recovery of this symptomatic boy as much as possible can find all the important information about the fundraising campaign on the family's website and on the social page of the Együtt Ádin Kezét Fogva Foundation .
Cover image: There is hope for the little boy, but a lot of money is still needed
Source: Facebook/Együtt Ádin Kezét Fogva Foundation
